The Sturge-Weber Foundation (SWF), a 501 (c)(3) nonprofit organization, has named Nemours/Alfred I. duPont Hospital for Children their newest Center of Excellence (COE) for patients living with Sturge-Weber Syndrome (SWS), Klippel-Trenaunay Syndrome (KT) and Port Wine Birthmarks.
As a member of the Foundation’s exclusive network of COE’s across the United States, Nemours/Alfred I. duPont Hospital for Children provides exceptional care to those with SWS. The COE consists of pediatric medical specialists dedicated to state-of-the-art treatment and to conducting clinical research studies and investigations in the understanding of these neurological conditions.
“We are thankful to have partnered with Nemours/Alfred I. duPont Hospital for Children, an internationally recognized children’s health system,” said Karen L. Ball, President and CEO, SWF. “Their physicians and medical professionals share our vision of providing patients and their families with access to extraordinary care. They are making great advancements in the treatment of children who are affected by SWS, KT and Port Wine Birthmarks.”
“The Foundation has bridged the gap in connecting patients with physicians who are specialists in the treatment of SWS, KT and Port Wine Birthmarks,” stated Harry Chugani, MD, chief, division of neurology at Nemours/Alfred I. duPont Hospital for Children. “The SWF is devoted to the improvement of care by fostering and guiding research and treatment for these children and their loved ones. Our specialists in neurology, neurosurgery, ophthalmology, genetics and dermatology work as a team to provide optimal family-centered care as well as innovation.”
The SWF’s mission in establishing COEs in partnership with prominent medical facilities is encouraging global collaboration between medical and research professionals to increase the pace of discovery in treatment conducted by various physicians and institutions. It is the Foundation’s ultimate goal that this collaboration facilitated through the COEs will help assist with research leading to new treatments reaching those who need it most.
Since its founding in 1987, the Sturge-Weber Foundation (SWF) has provided information, education and friendly support to adults and families of children with Sturge-Weber syndrome, a neurological disorder characterized by a facial port wine birthmark and often seizures and glaucoma. In 1992, the SWF expanded its outreach to include Klippel-Trenaunay (KT), a vascular disorder involving a port wine birthmark on the body or a limb. The SWF has initiated and supported comprehensive clinical and basic research into the diagnosis and treatment of these conditions, and continues to collaborate, translate the research, and encourage all expectations to improve patient quality of life. Visit www.sturge-weber.org and on Facebook.
Nemours is an internationally recognized children's health system that owns and operates the Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., and Nemours Children's Hospital in Orlando, Fla., along with outpatient facilities in six states, delivering pediatric primary, specialty and urgent care. Nemours also powers the world’s most-visited website for information on the health of children and teens, KidsHealth.org and offers on-demand, online video patient visits through Nemours CareConnect.
Established as The Nemours Foundation through the legacy and philanthropy of Alfred I. duPont, Nemours provides pediatric clinical care, research, education, advocacy, and prevention programs to families in the communities it serves.
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